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NS'ers with Lyme disease?

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Elmo.
Posts: 4317 - Karma: 663
hey guys i got diagnosed with lyme disease about 2 weeks ago and this shit blows. If anyone on here has gotten it before or know someone who has it you know what i mean.

Lyme is really getting me good. I developed bells paulsy which is a neurological that paralyzes the left side of your face. so i look like a stroke victim pretty much. but the doc thinks the lyme is in my central nervous system so i have to get a spinal tap for that and if it comes back positive i need the doxy cycline meds plus a med that you can only get for IV and i need that twice a day for 2 months. plus the lyme has given me really bad muscle cramps, tightness and soreness. And i got the famous lyme joint pains which are no fun.

ive had it for about a month now the doctors think. but i caught it early enough to where ill be fine in about 2-3 months but this is still screwing up my summer

any other NS'ers got any lyme stories. i know it can get pretty serious if gone un treated.

PS. anyone drink while on doxy. i guess it can be really bad for you but i dont know if thats true or not.
Aug 6 2013 4:37PM
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7-3instacall
Posts: 999 - Karma: 1,005
i feel like thats what i got, but i never had that bullseye rash.
i got fatigue, muscle achyness, diarhea from time to time, hardcore mood swings, dizziness...
i do go in the woods often to hike or bike so im thinking i could have it but
i don't know, at this point I'm kinda convinced thats my issue, i had blood samples and my poop examined and nothing... so i dont know, shit sucks, im just exausted, really sleepy or insomniac.
and i get those symptoms really intense for a week or two then they leave then come back.
dyou get that too or is it steady always non stop.
Aug 8 2013 10:12PM
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Elmo.
Posts: 4317 - Karma: 663
yea that happens to me too. like my muscle soreness comes and goes and so does the fatigue.
Aug 9 2013 10:56AM
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AT-AT
Posts: 3281 - Karma: 3,256
I relapsed a couple of weeks ago. Fatigue, headaches, and swollen glands, so right back on the medication I went. I still have all the symptoms, but not as bad, getting worried that I'll have to live with this shit forever.
Sep 25 2013 11:28PM
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SPskier543
Posts: 2413 - Karma: 324
what area?
Sep 26 2013 12:33AM
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CriesAfterSex
Posts: 123 - Karma: 41
Finally something I can contribute to. I actually almost died from it a couple months ago because it had gotten so bad. And recently just got rid of it a couple moths ago. After about 10 years of doctors not knowing what it was, or just diagnosing me with mono, I went to a doctor in Seattle who was able to help me get rid of it, or at least make most of it go away. It got so bad to were I couldn't digest food, and was actually starving to death. Vibes man! I know how you feel, hopefully you'll be shredding soon braj!
Sep 26 2013 2:04AM
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Phil-X-
Posts: 7205 - Karma: 14,399
My ugh.. glaucoma hurts real bad atm... Ill pm you. I need a visit from Dr. Errl
Sep 26 2013 2:26AM
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Bateman
Posts: 8591 - Karma: 8,600
just eat a bunch of lemons to even it out.
Sep 26 2013 6:20AM
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qazwsxedc34
Posts: 2955 - Karma: 2,135
*Frankie*yeah man ive had lyme disease too. could not move my right leg at all it was very inflamed to the point where i needed crutches. was on meds for a month but now everything is fine

You're lucky, I had Lyme since a child and have just recently developed debilitating symptoms from killing lots of it off. One day out of the week I'll feel slightly normal but if I have to do something like go to the store or shovel snow it drains me for the entire rest of the day, sometimes multiple days. Doctors and the CDC think that doxy kills Lyme in CNS infection like mine, it doesn't. The doctors and IDSA screwed me over with their piss poor tests and said I didn't have Lyme. They say fibro, CFS or depression. Kept asking if I was an opioid addict.
Feb 10 2017 3:33PM
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qazwsxedc34
Posts: 2955 - Karma: 2,135
Anyone ski whilst having Lyme? I haven't skied in a very long time and want so bad to ski because a massive storm is going to pound the North East this Monday and Wednesday. Not sure how I'll fair with the fatigue but it's better than laying in bed.
Feb 10 2017 8:23PM
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Cahal
Posts: 945 - Karma: 594
This is pretty funny because I literally just pulled a tic off of my arm in school rn. But the good thing is i already have lyme so hopefully im good to send it with tics for the rest of my life? someone correct me if im wrong please
May 25 2017 1:12PM
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jjdsteeze
Posts: 2562 - Karma: 4,135
CahalThis is pretty funny because I literally just pulled a tic off of my arm in school rn. But the good thing is i already have lyme so hopefully im good to send it with tics for the rest of my life? someone correct me if im wrong please


I mean if you already have lyme you aren't gonna get it again... but id imagine that it is possible to get worse symptoms if you were bit again?

Just a guess though.
May 25 2017 1:18PM
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iced
Posts: 3070 - Karma: 17,965
prof caught it in the field. He later passed away due to it. Glad ya caught it early
May 25 2017 1:19PM
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iFlip
Posts: 4543 - Karma: 19,132
jjdsteezeI mean if you already have lyme you aren't gonna get it again.


This is absolutely incorrect. You can get Lyme multiple times. Here is a link to some useful Lyme information: http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/lyme-faq.shtml#Q14
May 25 2017 2:08PM
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jjdsteeze
Posts: 2562 - Karma: 4,135
iFlipThis is absolutely incorrect. You can get Lyme multiple times. Here is a link to some useful Lyme information: http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/lyme-faq.shtml#Q14


That's what I was getting at. I just don't consider it "Getting lyme again" if you already have it. I figured you could get worse cases after having a mild case.
May 25 2017 2:15PM
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Cahal
Posts: 945 - Karma: 594
jjdsteezeThat's what I was getting at. I just don't consider it "Getting lyme again" if you already have it. I figured you could get worse cases after having a mild case.


Damn it, i thought i was special. Gotta look out for that red ring now...
May 26 2017 11:04AM
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iFlip
Posts: 4543 - Karma: 19,132
CahalDamn it, i thought i was special. Gotta look out for that red ring now...


The red ring only appears in some cases. By no means does it appear every time. It is not a good way to know whether or not the tick was carrying Lyme.
May 26 2017 11:27AM
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